Alex is an 11 year old boy who in 2010 was diagnosed with Duchenne Muscular Dystrophy, an aggessive, fatal muscle wasting disease that affects 1 in every 3500 boys. By age 9, most boys with Duchenne will be suffering muscle wastage and by age 13 are likely to be wheelchair dependent. By 19 they will probably be on a ventilator and require 24 hour care – most will die in their early 20’s.
Today I met a truly amazing lady – Alex’s mum, Emma Hallam.
Emma founded Alex’s wish with the sole purpose of funding research to find a cure for Duchenne and extending and improving the lives of thousands of boys. Her aim was to raise £1M by 2020. I am confident that she will make it and in so doing save the lives of thousands of young boys like Alex. “This generation will either be the last to die or the first to survive.” – science is nearing a cure, but we need to raise the money to fund the research.
On December 1st I will be holding the High Sheriff’s Christmas Fundraising Dinner at Leicester Cathedral to help make Alex’s Wish come true and fund further research into a cure for Duchenne, any help or support would be really appreciated.